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| GBS
- guide to further information |
|
WebMD
American website with lots of really
good information.
Guillain-Barré
Syndrome foundation International
Founded to assist victims, through support, education
and research. Newsletter. Brochures. Forums.
National
Institute of Neurological Disorders & Stroke
(NINDS)
Thorough.
NeurologyChannel:
Guillain-Barre Syndrome
Comprehensive, concise guide.
Guillain-Barre
Syndrome Support Group
UK. Information on GBS subtypes, patient care, etc.
Mayo Clinic - on GBS
and Peripheral
neuropathy.
MedicineNet.com:
Guillain-Barre syndrome
Short but to the point.
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| Peripheral
Neuropathy (PN) |
|
Merck.praxis:
Peripheral neuropathy
Excellent information.
|
| Chronic Inflammatory
Demyelinating Polyneuropathy (CIDP) |
|
CIDP
GBS-UK - excellent information.
An
overview of CIDP
GBS-Tasmania. Excellent.
CIDP
Mayo clinic's information.
CIDP
GBS-Oz: Short guide for patients and relatives.
Laurie
Miller's CIDP website
Good source of information and links.
|
| Miller Fisher
syndrome (MFS) |
|
Miller
Fisher syndrome
GBS-UK. Excellent. PDF file.
|
| Multifocal
Motor Neuropathy (MMN) |
|
MMN
GBS-UK. Excellent.
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Paraproteinaemic
Demyelinating Neuropathy (PDN)
Monoclonal Gammopathy of Unknown Significance (MGUS) |
|
PDN
GBS-Uk. Excellent.
|
| Diagnosis
|
|
Tips
for getting a proper diagnosis of an autoimmune
disease 
How patients with confusing, undiagnosed symptoms
can help obtain a correct diagnosis.
|
| Lumbar puncture
|
|
Medicine.Net:
Lumbar Puncture
What, why, how.....
Harvard
health Guide: Lumbar Puncture
More information.
|
Electromyography
(EMG)
Nerve Conduction Velocity (NCV)
Magnetic Resonance Imaging (MRI)
CT scan
Somatosensory Evoked Potentials (SSEP) |
|
EMG
& NCV
More information on the procedures and what they
may indicate.
The
basics of MRI
All you ever want to know about MRI!
What
is MRI
More on MRI.
Harvard
health guide: EMG
Click "know more about this test" for
more info.
What
is SSEP
In-depth explanation.
|
| Plasmapheresis:
Further information |
|
Plasmapheresis
and autoimmune disease
Muscular Dystrophy Association: Facts about plasmapheresis.
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| Immunoadsorption
(Imad) |
|
Treatment
of autoimmune diseases by immunoadsorption
More on Immunoadsorption.
|
| CerebroSpinal
Fluid Filtration (CSFF) |
|
CSF
Filtration
Webmaster's collection of information and links.
|
| Alternative
Medicine |
|
Please note that these links are in no way endorsed.
Evidence-based
complementary medicine
Aromatherapy,
helping recovery
How
reflexology may help
Reflexology
Association of America: GBS
What
is CranioSacral Therapy?
Supplements
that possibly have an effect on nerve healing
Supplements:
The Good, The Bad and The Ugly
Nutrients
-- Multivitamin Maze
|
| Immune
System |
|
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| Patient
care |
|
Coping
with autoimmunity
AARDA. Learn to manage your illness.
Psychotic
Symptoms and Emotional Distress in Patients with
Guillain-Barré Syndrome.
How inability to move and communicate may distress
patients.
|
| Pain
Management |
|
PDR.net
New answers to pain
Pain, and the various ways of managing it.
Neuropathy
pain management guidelines published
|
| Physiotherapy
& disability products |
|
Physiotherapy
in helping recovery
A physiotherapist explains the whys and wherefores
of physical therapy and rehabilitation.
Disabled
Dealer
New and pre-owned adaptive equipment and resources.
GTK
Rehab
Aussie company offers seating and mobility solutions.
Catalogcity
Over 90 catalogs with disability products. Search
for Catalogs using the keyword disability, or search
for specific products. The bottom of the homepage
has links to international branches.
The
Boulevard Website
A Directory of Products and Services for the Elderly,
Physically Challenged, Caregivers and Healthcare
Professionals.
Yahoo!
Check the Yahoo for your country, and search for
disability products.
Amazon
Amazon's Medical Supplies section has catalogues
for medical supplies which include some disability
aids. Catalogues may be slightly out of date.
|
| Mechanical
ventilation |
|
Vent
Users Support Page
Many links to ventilator-related information.
Aaron's
Tracheostomy Page
Very detailed on many aspects of tracheostomy.
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| Communication
with the patient |
|
An
Eye-movement controlled Communication appliance:
from Eye-Letter-Selector to Handi-writer
|
| Recovery |
|
Infections
and course of disease in mild forms of Guillain-Barré
syndrome.
Factors that influence the severity of GBS.
Can
Guillain-Barré Syndrome Recur?
About the risk of recurrence.
|
| Post-GBS
residuals |
|
Post-GBS
residual symptoms
A collection of patient-to-patient resources unique
to this website. Contains tips, patient experiences,
information and lots more!
|
Vaccinations
The content of these articles in no way constitute
medical advice! |
|
Flu
Prevention for the 2003-2004 Season
"Respiratory
Etiquette" To Help Prevent colds, flu etc.
GBS-patients
and Vaccinations
Immunisation
notes - GBS-UK on immunisations.
CDC
- National Immunization Program
GBS and the influenza vaccine.
MedicineNet :
Influenza vaccination
Flu
Shots - Next Big Influenza Outbreak
Evidence
of indications of influenza vaccine and its efficacy--including
Guillain-Barre syndrome as an adverse reaction
New
nasal flu vaccine not for everyone
FluMist is a weakened, live vaccine that is sprayed
into the nostrils
Study
shows risk of rare disorder from flu vaccine is
slight
C-Health (1998)
Flu
season approaching; vaccinations now available
National
Vaccine Information Center - General info on
vaccines.
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| Organisations
that offer non-English information |
|
The
Swedish Association of Persons with Neurologically
Disabilities
(Neurologiskt
Handikappades Riksförbund )
Promotes the interests of people with a variety
of neurological disorders / NHR är en svenska
organisation för neurologiskt sjuka och handikappade
samt deras familjer och närstående.
Små
og mindre kända handikappgrupper (Sverige)
En kunskapsdatabas om små och mindre kända
handikappgrupper.
Funksjonshemmedes
Fellesorganisasjon
Norwegian Federation of Organisations of Disabled
Persons. Lots of very practical advice.
|
| Chat
rooms & Forums |
|
GBS
Foundation International
Massachusetts
General Hospital - Neurology Chat rooms
Med
Help: GBS Q&A
Top
|
| Personal
websites, case histories |
|
Everything
you've wanted to know about GBS
|
| GBS
in children |
|
GBS-UKs Kidz
zone has GBS information for kids
|
| Miscellaneous |
|
Respiratory
infections- prevention and treatment
Did Søren Kierkegaard suffer from GBS??
An analysis of Kierkegaards hospital records suggests
that he suffered from GBS, falling down at home
and in the streets. Read the section 'Death and
Reputation'.
Intravenous
Immune Globulin Therapy for Neurologic Diseases
The method and substance is described thoroughly.
More
about IVIg
The product, about infection, etc.
Medical
dictionary of popular medical terms
Medterms.com - constantly updated.
Gimp
on the Go
Travelling with a disability? Ideas, tips and tons
of information.
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