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Gamunex
validated for CIDP treatment in US.
Immobilised within hours - a teen basket player's story.
Recovered well enough to play pro football!
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01-10-2008 |
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A recent study has proved the beneficial effects of
IGIV in CIDP, and validated the long-term safety and
efficacy of Gamunex as the first line and maintenance
treatment for CIDP. This has led to FDA approval, and
US patients with CIDP finally have an FDA-approved medication
to help limit peripheral nerve damage [more].
Matt Palm, promising basketball player, went from healthy
to immobilised in a matter of hours, as Guillain-Barré
attacked. Read about his recovery and how to turn lemons
into lemonade [more].
Meanwhile, in the UK, rising talent Jamie Brooks has
recovered from Guillain-Barré to the extent that
he is now signed up with Oxford City [more].
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Seek
medical help at once - fatalities still occur!
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25-09-2008 |
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Guillain-Barré syndrome is a very mysterious
and complicated syndrome about which much still remains
unknown. The vast majority of sufferers recover - however,
recovery in some rare cases takes years to occur, or
may never occur, and in very rare cases, deaths do still
occur, although to a far less extent than in the past.
If you feel you have symptoms, or your symptoms worsen,
do NOT delay, please seek medical help at once!
Sufferer Jeff
Morrison's case was "atypical" because
he never recovered enough to resume an active life;
he has just died. Elsewhere, Mohan Tiwari's almost 5-year
old daughter died after a 36-hour bout with Guillain-Barré
following a dysentery attack. I wish both families strength
in their time of loss and sorrow.
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Living
on purpose: paralysed, but not stuck!
Test your flu IQ.
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15-09-2008 |
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Completely paralysed and living on life support a couple
of years ago, Marco had to put his dream job on hold.
He is now walking again, although with a slight limp,
and is excited to be getting back to work again, saying
"Im excited to wear my police gear again;
regaining full use of my legs is still a challenge;
I am scared about re-integrating into the department.
But I cant help but be inspired about taking my
dream off hold. Read his interview with life coach
Sheri Fisher, on the challenges of paralysis then and
today [more].
Its influenza vaccination time again! Have you suffered
from Guillain-Barré syndrome, or a variant, and
are you now considering being vaccinated? Check your
flu IQ [here].
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Raw
milk cause of food poisoning and GBS case?
Aussie GBS survivor refuses to live in fear.
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15-08-2008 |
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Raw milk is milk that is unpasteurized, and in essence,
comes straight from the udder. It has become popular
among health-conscious consumers for various reasons.
However, in California, the Dept of Public Health suspects
at least 15 people who ingested raw milk contracted
Campylobacter (food poisoning). One sufferer has developed
Guillain-Barré syndrome and is in intensive care
[more].
Read more about the incidence
of this syndrome - what causes it, is it infectious...
A serious attack of Guillain-Barré left Erik
de Haart deteriorating so quickly that his family was
told he had only 40% chances of surviving until the
next day. de Haart was, however, made of sterner stuff,
and fought his way to recovery. Having also survived
the second Bali attack, he has a strong urge to make
a difference: He plans to cross Chile's brutal Atacama
Desert on foot to raise at least $60,000 for the Sydney
Children's Hospital [more].
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