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Gamunex validated for CIDP treatment in US.
Immobilised within hours - a teen basket player's story.
Recovered well enough to play pro football!
01-10-2008

A recent study has proved the beneficial effects of IGIV in CIDP, and validated the long-term safety and efficacy of Gamunex as the first line and maintenance treatment for CIDP. This has led to FDA approval, and US patients with CIDP finally have an FDA-approved medication to help limit peripheral nerve damage [more].

Matt Palm, promising basketball player, went from healthy to immobilised in a matter of hours, as Guillain-Barré attacked. Read about his recovery and how to turn lemons into lemonade [more]. Meanwhile, in the UK, rising talent Jamie Brooks has recovered from Guillain-Barré to the extent that he is now signed up with Oxford City [more].

 
Seek medical help at once - fatalities still occur!
25-09-2008

Guillain-Barré syndrome is a very mysterious and complicated syndrome about which much still remains unknown. The vast majority of sufferers recover - however, recovery in some rare cases takes years to occur, or may never occur, and in very rare cases, deaths do still occur, although to a far less extent than in the past. If you feel you have symptoms, or your symptoms worsen, do NOT delay, please seek medical help at once!
Sufferer Jeff Morrison's case was "atypical" because he never recovered enough to resume an active life; he has just died. Elsewhere, Mohan Tiwari's almost 5-year old daughter died after a 36-hour bout with Guillain-Barré following a dysentery attack. I wish both families strength in their time of loss and sorrow.

 
Living on purpose: paralysed, but not stuck!
Test your flu IQ.
15-09-2008

Completely paralysed and living on life support a couple of years ago, Marco had to put his dream job on hold. He is now walking again, although with a slight limp, and is excited to be getting back to work again, saying "I’m excited to wear my police gear again; regaining full use of my legs is still a challenge; I am scared about re-integrating into the department. But I can’t help but be inspired about taking my dream off hold.” Read his interview with life coach Sheri Fisher, on the challenges of paralysis then and today [more].

Its influenza vaccination time again! Have you suffered from Guillain-Barré syndrome, or a variant, and are you now considering being vaccinated? Check your flu IQ [here].

 
Raw milk cause of food poisoning and GBS case?
Aussie GBS survivor refuses to live in fear.
15-08-2008

Raw milk is milk that is unpasteurized, and in essence, comes straight from the udder. It has become popular among health-conscious consumers for various reasons. However, in California, the Dept of Public Health suspects at least 15 people who ingested raw milk contracted Campylobacter (food poisoning). One sufferer has developed Guillain-Barré syndrome and is in intensive care [more]. Read more about the incidence of this syndrome - what causes it, is it infectious...

A serious attack of Guillain-Barré left Erik de Haart deteriorating so quickly that his family was told he had only 40% chances of surviving until the next day. de Haart was, however, made of sterner stuff, and fought his way to recovery. Having also survived the second Bali attack, he has a strong urge to make a difference: He plans to cross Chile's brutal Atacama Desert on foot to raise at least $60,000 for the Sydney Children's Hospital [more].

 

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