News
- updated as often as there's news to offer you!
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| News
archive - interesting happenings on the GBS scene
in 2003 |
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2002
2001
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Introduction
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| Other languages - Espanol, Francais,
Japanese, Korean etc. |
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Danish
Other languages
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Terms
of Use
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| GBS
basics - basic facts about GBS. |
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GBS
- Facts at a glance
What
is a 'Syndrome'?
The
many names of the syndrome
Variants
of GBS
- Focus
on MMN
Further reading & relevant
links
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| Incidence
- is GBS infectious? |
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Is
GBS infectious?
What
causes GBS?
GBS
and pregnancy
Further reading & relevant
links
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| Damage
caused - what's happening to my body? |
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GBS:
an auto-immune disease
Attack
on the peripheral nerves
GBS types,
based on damage caused
Destruction
of nerve insulation
Chaos
in the body
Hospitalisation
can be a matter of life and death
Further reading & relevant
links
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| Symptoms
- what causes them? What's ok, what's not? |
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Three
types of symptoms
- sensory
nerve fibers are damaged
- motor
fibers are damaged
- autonomous
nerves function may be disrupted
Symptoms
show varying intensity
Acute
hospitalisation can be necessary
Symptoms
to watch for
Symptoms
to be specially watchful for
Symptoms
of possible life-threatening situations
Further reading & relevant
links
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| Diagnosis
- what are they looking for? How? |
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The
medical examination
What
is a Lumbar puncture?
What
is a Nerve Conduction Velocity test?
What
is an Electromyogram?
What
is an Electrocardiogram?
What
is a nerve biopsy?
Problems getting a diagnosis?
Is GBS related to Multiple
Sclerosis?
Further reading & relevant
links
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| Phases
of GBS - will I get better? When? |
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Progressive
phase
Plateau
phase
Recovery
phase
Further reading & relevant
links
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| Treatment
- ease the symptoms, understand the therapy |
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Pain:
Part of the disease
- Focus on Pain
Pain
Management & Drug Therapy
Patient
selfcare
Alternative
medicine
Paralysis,
Ventilator treatment & Tracheostomy
Communication
is vital!
Psychological
care of GBS patients
Immune-therapy:
Treatments targetting the antibodies
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The Pros and Cons of PE and IVIg
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Plasmapheresis (PE)
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IntraVenous Immunoglobulin (IVIg)
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Immunoadsorption (Imad)
Other
treatments & care
Further reading & relevant
links
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| Recovery
- will I recover? What about the future? |
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Majority
of patients recover
Nerve
cells are regenerated
Statistics
Complete
recovery?
Rehabilitation:
Patience required!
Learn
your limits
Exhaustion
Pain:
A part of life in the future
Other
needs during recovery
- Patients
talk about GBS & Intimacy
- Post-GBS
residual symptoms
Risk of relapses?
Are
vaccinations a problem?
The
future perspective
Further reading & relevant
links
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| Health
Professionals - links and specific info |
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| Readers'
comments - comments, appeals and responses |
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| Case
histories - involving GBS, MFS, CIDP, AMSAN, MGUS/PDN
.. |
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| Research
& trials - read about work in progress, newly
published papers and studies recruiting patients |
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| Support
networks - wherever you are, there's one nearby |
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| Links
- more information on the internet and in print |
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Printed
matter on GBS
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| Webmaster's
Forum - about this website and its webmistress |
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| Chat
- meet other patients online, exchange tips and experiences |
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| Contact
- address, how to make donations, etc. |
