- Links to further information -

Websites move, change or become obsolete - please report dead links! Comments? Suggestions? Email me!

Choose a category ---------------------- GBS - further information PN - Peripheral Neuropathy CIDP- Chronic Inflammatory Demyelinating Polyneuropathy MFS - Miller Fisher syndrome MMN - Multifocal Motor Neuropathy PDN/MGUS - Paraproteinaemic Demyelinating Neuropathy Diagnosis, more about Lumbar puncture EMG, NCV, MRI, CT, SSEP Plasmapheresis: more! Imad - Immunoadsorption CSFF - CerebroSpinal Fluid Filtration Alternative medicine Immune system Patient care: Psychological and other aspects Pain Management Physiotherapy & Disability Products Mechanical ventilation: further information Communication with patients Recovery Post-GBS Vaccinations Organisations that offer non-english information Chatrooms and forums Personal websites GBS in children Miscellaneous

GBS - guide to further information

WebMD American website with lots of really good information. Guillain-Barré Syndrome foundation International Founded to assist victims, through support, education and research. Newsletter. Brochures. Forums. National Institute of Neurological Disorders & Stroke (NINDS) Thorough. NeurologyChannel: Guillain-Barre Syndrome Comprehensive, concise guide. Guillain-Barre Syndrome Support Group UK. Information on GBS subtypes, patient care, etc. Mayo Clinic - on GBS and Peripheral neuropathy. MedicineNet.com: Guillain-Barre syndrome Short but to the point. Top

Peripheral Neuropathy (PN)

Merck.praxis: Peripheral neuropathy Excellent information.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

CIDP GBS-UK - excellent information. An overview of CIDP GBS-Tasmania. Excellent. Mayo clinic: CIDP CIDP GBS-Oz: Short guide for patients and relatives. Laurie Miller's CIDP website Good source of information and links.

Miller Fisher syndrome (MFS)

Miller Fisher syndrome GBS-UK. Excellent. PDF file.

Multifocal Motor Neuropathy (MMN)

MMN GBS-UK. Excellent. Top

Paraproteinaemic Demyelinating Neuropathy (PDN) Monoclonal Gammopathy of Unknown Significance (MGUS)

PDN GBS-Uk. Excellent.

Diagnosis

Tips for getting a proper diagnosis of an autoimmune disease How patients with confusing, undiagnosed symptoms can help obtain a correct diagnosis.

Lumbar puncture

Medicine.Net: Lumbar Puncture What, why, how..... Harvard health Guide: Lumbar Puncture More information.

Electromyography (EMG) Nerve Conduction Velocity (NCV) Magnetic Resonance Imaging (MRI) CT scan Somatosensory Evoked Potentials (SSEP)

EMG & NCV More information on the procedures and what they may indicate. The basics of MRI All you ever want to know about MRI! What is MRI More on MRI. Harvard health guide: EMG Click "know more about this test" for more info. What is SSEP In-depth explanation.

Plasmapheresis: Further information

Plasmapheresis and autoimmune disease Muscular Dystrophy Association: Facts about plasmapheresis. Top

Immunoadsorption (Imad)

Treatment of autoimmune diseases by immunoadsorption More on Immunoadsorption.

CerebroSpinal Fluid Filtration (CSFF)

CSF Filtration Webmaster's collection of information and links.

Alternative Medicine

Please note that these links are in no way endorsed. Evidence-based complementary medicine Aromatherapy, helping recovery How reflexology may help Reflexology Association of America: GBS What is CranioSacral Therapy? Supplements that possibly have an effect on nerve healing Supplements: The Good, The Bad and The Ugly Nutrients -- Multivitamin Maze

Immune System

Top

Patient care

Coping with autoimmunity AARDA. Learn to manage your illness. Psychotic Symptoms and Emotional Distress in Patients with Guillain-Barré Syndrome. How inability to move and communicate may distress patients.

Pain Management

PDR.net New answers to pain Pain, and the various ways of managing it. Neuropathy pain management guidelines published

Physiotherapy & disability products

Physiotherapy in helping recovery A physiotherapist explains the whys and wherefores of physical therapy and rehabilitation. Disabled Dealer New and pre-owned adaptive equipment and resources. GTK Rehab Aussie company offers seating and mobility solutions. Catalogcity Over 90 catalogs with disability products. Search for Catalogs using the keyword disability, or search for specific products. The bottom of the homepage has links to international branches. The Boulevard Website A Directory of Products and Services for the Elderly, Physically Challenged, Caregivers and Healthcare Professionals. Yahoo! Check the Yahoo for your country, and search for disability products. Amazon Amazon's Medical Supplies section has catalogues for medical supplies which include some disability aids. Catalogues may be slightly out of date.

Mechanical ventilation

Vent Users Support Page Many links to ventilator-related information. Aaron's Tracheostomy Page Very detailed on many aspects of tracheostomy. Top

Communication with the patient

An Eye-movement controlled Communication appliance: from Eye-Letter-Selector to Handi-writer

Recovery

Infections and course of disease in mild forms of Guillain-Barré syndrome. Factors that influence the severity of GBS. Can Guillain-Barré Syndrome Recur? About the risk of recurrence.

Post-GBS

Post-GBS residual symptoms A collection of patient-to-patient resources unique to this website. Contains tips, patient experiences, information and lots more!

Vaccinations - The content of these articles in no way constitutes medical advice!

Flu Prevention for the 2003-2004 Season "Respiratory Etiquette" To Help Prevent colds, flu etc. GBS-patients and Vaccinations Immunisation notes - GBS-UK on immunisations. CDC - National Immunization Program GBS and the influenza vaccine. MedicineNet : Influenza vaccination Flu Shots - Next Big Influenza Outbreak Evidence of indications of influenza vaccine and its efficacy--including Guillain-Barre syndrome as an adverse reaction New nasal flu vaccine not for everyone FluMist is a weakened, live vaccine that is sprayed into the nostrils Study shows risk of rare disorder from flu vaccine is slight C-Health (1998) Flu season approaching; vaccinations now available National Vaccine Information Center - General info on vaccines. Top

Organisations that offer non-english information

The Swedish Association of Persons with Neurologically Disabilities (Neurologiskt Handikappades Riksförbund ) Promotes the interests of people with a variety of neurological disorders / NHR är en svenska organisation för neurologiskt sjuka och handikappade samt deras familjer och närstående. Små og mindre kända handikappgrupper (Sverige) En kunskapsdatabas om små och mindre kända handikappgrupper. Funksjonshemmedes Fellesorganisasjon Norwegian Federation of Organisations of Disabled Persons. Lots of very practical advice.

Chat rooms & Forums

GBS Foundation International Massachusetts General Hospital - Neurology Chat rooms Med Help: GBS Q&A Top

Personal websites, case histories

Everything you've wanted to know about GBS

GBS in children

GBS-UKs Kidz zone has GBS information for kids

Miscellaneous

Respiratory infections- prevention and treatment Did Søren Kierkegaard suffer from GBS?? An analysis of Kierkegaards hospital records suggests that he suffered from GBS, falling down at home and in the streets. Read the section 'Death and Reputation'. Intravenous Immune Globulin Therapy for Neurologic Diseases The method and substance is described thoroughly. More about IVIg The product, about infection, etc. Medical dictionary of popular medical terms Medterms.com - constantly updated. Gimp on the Go Travelling with a disability? Ideas, tips and tons of information. Top

 

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© Copyright 2001-2007 S. Marcussen. All rights reserved.
Jsmarcussen.com/gbs takes no responsibility for any errors, omissions or misinterpretations. These pages should be used for information only and you are strongly advised to seek professional help particular to your circumstances. For more information, please visit the website http://www.jsmarcussen.com/gbs or e-mail jsmarcussen@mail.tele.dk