See 'Case histories' for Lauris amazing story, this is a must-read!

"It seems that I only get illnesses which nobody has heard of and are difficult to pronounce!
The presentation and progression of my Guillain-Barré Syndrome was, in some aspects, extremely unusual. In other aspects, it was typical of a case of moderate severity. However, not being believed is, unfortunately, not so unusual. I know of a GBS sufferer who was put in a mental hospital when she couldn't move, and of a teenager who got weaker and weaker as her parents accused her of faking to get attention.
I am flattered that Sharon asked to include my story, and want to reassure readers that I currently consider myself only slightly physically compromised, and am happy, if not 100% healthy, in suburban Seattle, USA." - Lauri

Have a wonderful christmas and an amazing New Year! May 2003 bring good health and joy for you and your dear ones!  

13-year old Alex recovered successfully from suspected MFS. His parents feel certain chiropractic treatments were beneficial - see "Case histories".

Kezzi has had CIDP/AMSAN for a number of years, and has generously agreed to share his case history here. Read his information-packed case history! See "Case histories".
GBS Foundation International's biannual symposium is being held in California 22-23 Nov. 2002.

David Cleal has very kindly decided to share his encounter with Miller Fisher syndrome. MFS is a rare sub-type of GBS, which is a rare syndrome in itself. Written by his wife, it details the frustrations and joys patients experience.
See "Case histories".

The first national GBS rally I organised earlier this year was a success. Read the report and see the pictures!

Sue and her newly-diagnosed husband require support - see Sue's email under 'Readers Comments'.

Jimmy Logan, the cutest little boy on the east coast... the story of a child with GBS. See Case histories.

Konrad Tiburzy is a German gentleman, whose condition appears to be deteriorating slowly, despite continuous treatment with Ig. He is very interested in corresponding with persons who know something about on-going research into GBS/CIDP... Check out Case histories and Readers' Comments.

Liverpool defender Marcus Babbel is determined to return next season... [more], giving up his earlier wish to play this season ...[more]. He has come a long way since beginning treatment ... see 18.03.2002.

Asger Lauridsen of Denmark is convinced his brother died of GBS in 1945. Read his memories of what happened then under 'Case histories'.

The GBS Denmark chatroom is finally here! Ex-patients, patients, family members, health professionals - everybody with an interest in GBS/CIDP is welcome.
There will be weekly chats every wednesday at 21.00-22.00 Danish time (GMT+1 summer, GMT+2 winter) on subjects such as medication, treatment etc. Check 'Chat' in the Danish section of the website to log on.

Milt Steele, WA USA, has had GBS/CIDP since 1992. He believes that heavy metal poisoning may have played a role in his contracting the syndrome. Milt is a long-time user of plasmapheresis/IVIg (1993-2002) and his story is a great example of CIDP Management by the patient!
'Other languages' is finally ready for those who are more comfortable in languages other than Danish & English. Check out the new links, on everything from Kierkegaard to MMN!

The page for Health Professionals is now up and running. It will contain information and links for health professionals dealing with GBS patients.
Konrad Tiburzy from Germany has written in about a new (?) treatment for GBS - read his email on the Readers' Comments page, where more details are available.

Markus Babbel, German Liverpool defender, has begun training again. Here he speaks about his treatment and aspirations [more].

As you may already have noticed, the website is undergoing a makeover designed to improve its appearance, to introduce new features and to improve navigation. I apologise for any inconvenience caused - if you find dead links or errors, please report them so they can be rectified. Check out the Danish section for a sneak preview!

One of the new features being introduced is the section for health professionals. It will contain information and links chosen specifically for you. If you have content or links you would like to share with colleagues all over the world, please do email!

The GBS support group of the UK are holding their annual conference on 20 April 2002. Interested? Sign up and send in the fee by 01 April 2002, details at their website.

I am designing a new batch of brochures for distribution to hospitals and physicians in Denmark. The purpose of the brochure is to increase awareness of the syndrome, both among health professionals and patients. Does anyone have any good suggestions as to content or recipients that I could incorporate? Suggestions are welcome...

Peter von der Fehr and his partner Lisbeth love the response to their GBS-diary, in the form of emails from all over the world. Thank you for writing in or calling during the crises Peter experienced.
Is anybody else interested in a similar project? Please contact me.

Ex-patients and family/friends of GBS-patients willing to share their experiences with patients and their families - please contact me for further information on the activities of the support group!