May 2006: The "Focus
on Pain" page has just been updated with an excellent article
on effective neuropathic pain management strategies as well as one
on the effect of the beliefs and preconceptions of nursing staff.
Look for the
symbols!
American consumers are not alone in this battle against
rising drug costs. The US FDA is easing approval of more affordable
generic medications, and some drug companies have programs to make
their products more affordable for consumers [more].
Many patients have difficulty getting a diagnosis,
because of the various ways in which this mysterious syndrome presents
itself. In 1991, Canadian politician John Tory's wife was treated
with chemotherapy for her symptoms, before doctors finally diagnosed
her as suffering from Guillain-Barré [more].
Megan Lynn Banik, american high school senior, learned
a vital life lesson when she was laid low by Guillain-Barré.
In addition, the neurologists treating her piqued her fascination
with nerves and the brain, and she intends to attend medical school
and specialise in neurology [more]!
Dance company Marie Chouinard is visiting Singapore
next month, where 'Body remix/Goldberg Variations' incorporating prosthetics
will be performed ... use the search box (right) for more.
Australian Jack Taylor is confined to a wheelchair
as he recovers from Guillain-Barré following a take-away meal
of chicken and chips.
Experts have found a significant increase in australians contracting
bacterial infections from eating contaminated chicken. The increasing
numbers of potentially fatal food poisoning cases are leading to demands
for an overhaul of the chicken industry [more].
I love this case history: Courtney, an eight-year
old from New Zealand, got through a bout with Guillain-Barré
syndrome and spoke about her experience at the 2005 GBS conference
about her experience. See 'Case histories'!
The American GBS/CIDP Foundation has designated May
as National GBS Awareness Month to educate Americans about this rare
debilitating disorder. Local chapters across the U.S. and around the
world will conduct activities to raise awareness, including educational
seminars and walk-a-thons led by friends and family members of GBS
patients. Please do check with your local chapter to see if they are
arranging something and if they could use your help!
And finally, a survey
finds that many american GBS patients forego proper medical care because
they fear they will not be reimbursed by insurance programs! This
is particularly dangerous because GBS has the potential to paralyse
your heart if you are particularly unlucky. And spacing out treatment
may result in more damage occuring within your body.
--------
For more news, see "Archive"
© Copyright 2001-2007 S. Marcussen. All rights
reserved.
Jsmarcussen.com/gbs takes no responsibility for any errors, omissions
or misinterpretations. These pages should be used for information
only and you are strongly advised to seek professional help particular
to your circumstances. For more information, please visit the website
http://www.jsmarcussen.com/gbs or e-mail
jsmarcussen@mail.tele.dk