All about Guillain-Barré Syndrome - News & Happenings on the GBS scene in 2001

December 2001: After receiving a request from a reader whose pregnant wife has GBS (see Readers' Comments), I have become aware of the lack of information on GBS+Pregnancy. I am putting together a dedicated page on the subject. Please email to share your story or information that could help them.

Thank you, everybody who wrote it, for your emails and calls during the year - Happy Holidays!

November 2001: This month Peter Norlund has chosen to write in and share his story, see 'Case Histories'. These case histories are very popular among patients and their families, as they can find support, advice and solace in knowing that others have had precisely the same pattern of symptoms and lived to tell the tale.... The course of the syndrome as well as symptoms vary from patient to patient, and so reading other patients' stories is very useful and supportive, both to patients and to health personnel. Please email to share your story as a GBS patient, an ex-patient or a relative.

I am often urged to publish more case histories with a positive outcome, to give desperate patients hope. However, much as I would like to, I just don't receive many of these! Most ex-patients are busy creating a new life for themselves, which is understandable. Writing their case histories isn't a priority. On behalf of all the patients who need such stories - please send your story in! Yours may well be the story that helps a doctor diagnose a difficult case....

October 2001: The translation of the danish-language website is almost complete. Thanks to all of you who sent in appreciative emails!
New links are constantly being added to the 'Links' section of the website, so do check it out!

September 2001: Danish Morten Wieghorst, football player for Scottish Celtics, is in play again. He scored a goal in his first game since his comeback, and thanks everyone for their sympathy. Reports can be found on the major search engines. The syndrome is still mistakenly being reported by Yahoo Sport (danish version) and a major Danish newspaper, Politiken, as being a brain disease. Morten was diagnosed as suffering from GBS in October 2000, and required the use of a ventilator for a while, before his recovery and comeback.

August 2001: The website is in the process of being translated to english, to fulfill the needs of the international visitors to the website. Volunteers are required to translate portions of the website into other major languages....
Please bear over the errors you are bound to find, these will be rectified later. The priority has been to get information out ASAP.

June/July 2001: The Danish Center for Sjældne Handicap (Center for Rare Disorders) mentions this website in its newsletter of 29/6-2001.

May 2001: This website has just been featured on the Danish Association of Doctors website, (DADLNET.dk).

April 2001: Danish footballer Morten Wieghorst, who plays for Scottish Celtics, was diagnosed as suffering from GBS in october 2000. He is now in recovery, after a period in hospital during which he required the use of a ventilator.
Check the major search engines for reports of his progress.

© Copyright 2001-2007 S. Marcussen. All rights reserved.
Jsmarcussen.com/gbs takes no responsibility for any errors, omissions or misinterpretations. These pages should be used for information only and you are strongly advised to seek professional help particular to your circumstances. For more information, please visit the website http://www.jsmarcussen.com/gbs or e-mail jsmarcussen@mail.tele.dk